Learning about viral hepatitis and Indigenous people

Since 2010, I’ve been part of an NHMRC Centre for Research Excellence in Aboriginal health – REACCH (Research Excellence in Aboriginal Community Controlled Health). The collaboration is jointly managed by the Kirby Institute at UNSW and the National Aboriginal Community Controlled Health Organisation (NACCHO); there are four participating Aboriginal community-controlled health services:

Nunkuwarrin Yunti in South Australia
Aboriginal Medical Service Western Sydney
Victorian Aboriginal Health Service
Goondir Health Services in Queensland

Our research focuses on sexually transmitted infections and blood-borne viruses; each health service has developed projects that meet local priorities but we have also undertaken complex analyses of data from the services’ patient information management systems (for example this paper on hepatitis b).

This week I’m at the inaugural World Indigenous Peoples’ Conference on Viral Hepatitis in Alice Springs, with several REACCH colleagues. Viral hepatitis is a significant health burden for Aboriginal and Torres Strait Islander people (eg the rate of help c is increasing, in contrast to non-Indigenous people). Check out the twitter conversation via #IndigHVConf . Yesterday I presented on clients’ experiences of hep c treatment undertaken within a community setting – Nunkuwarrin Yunti.

Later in the week the World Indigenous Peoples’ conf makes way for the 9th Australian Viral Hepatitis Conference. I’m presenting on Friday on what made the community-based hep c treatment program acceptable to clients (hint: it was everything a hospital wasn’t). I’ll post the twitter hash tag here when things kick off.

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One thought on “Learning about viral hepatitis and Indigenous people

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  1. Thanks for sharing this information Julie. Just thought that I’d share with you about my research. The AVID Study (http://www.avidystudy.com http://www.avidstudy.com [corrected by Julie]) is mapping Aboriginal voice in public health committees in the Hunter New England region of NSW. The AVID philosophy is to be ‘online, all the time’ and to that end we have a social media integration strategy which includes inter-connecting with stakeholders through their social media accounts. As the AVID study continues stakeholders are kept informed about study progress, data collection and analysis, and can contribute to our developing community of practice through blogs. It’s about being transparent and accountable throughout the researhc process. Let me know your thoughts, and I look forward to more of your blogs about REACHH. Mark

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